This plea is based on methods and technologies that have been published since some years now. One striking application of those ideas is the new drug for SMA: Zolgenma. SMA is a related disease to ALS, and the most common genetic cause of infant death.
https://padiracinnovation.org/Blog/2019/02/a-plea-for-a-gene-therapy-for-als
Please, if you know someone in the pharmaceutical industry who could be interested, could you discuss with her/him about the ideas in this document?
Many thanks
Jean-Pierre